Neurology, dopamine, levodopa, rigidity, tremor, young onset, insomnia… words that now swim around my mind and are solidifying into my subconscious.
My 35 year old husband has an incurable, degenerative, neurological disease. We have been assured that among the neurological family of diseases, this is the best one to have. A morbid and strange utterance to hear.
The first of many future scripts is filled, detailing a new medication that will hopefully alleviate the symptoms that have now found a home in my husband’s body. New medication that will become so familiar to us, so recognisable, yet so despised.
We are hopeful that this medication takes effect – confirming the diagnosis, as we dare not open other doors that may hold far more sinister realities. The words Motor Neurone are heard and our expressions are fixed with a mixture of horror and disbelief. I will my silent tears to stop from falling and quietly pray that this new medicine is effective, avoiding grim alternatives.
I force thoughts and visions of our future out of my mind. I continually bring myself back to the present, trying to focus on the here and now and what lies ahead of us – sharing this news with our family.
We tell our precious girls, who at the time, were 8 and 5. They comprehended what they were able to grasp, most likely not understanding the gravity of this new life path, that they are now unwittingly heading down. What does this mean for them? How will their lives change? How much will their Daddy change?
We share the news with our parents and siblings, my stomach in knots, relaying the information over and over. Shocked, saddened, pensive faces match ours. Kind words spoken, warm hugs given.
The medication takes effect. This is it. Outside, the change of seasons has commenced. Trees abandoning their leaves for another year, glistening frost covers the ground just before we are gifted with another sunrise, heralding the start of Winter.
A new season. Denial.