Tag Archives: dopamine

51 Weeks remain

It appears the sliding of wires through my fleshy grey matter has adjusted my ability to control my impulses. Depending on your perspective I am more fun, confident, decisive and brave; or rash, childish, impatient and reckless. Internally, I’m still just me – though in a continual tug of war between anxiety and determination; shame and vulnerability.

And so, making grandiose plans for 2021 is likely not the wisest choice for me at this point in time, but then…YOLO.

So with some external inspiration from a young middle-eastern chap on insta (@the_spare_minute_runner) I figured I’d start a fundraising effort with the Michael J Fox foundation where I’ve committed to completing high intensity fitness training every day this year.

Now, Parkinson’s disease in a nutshell is the brain’s inability to produce dopamine. We use dopamine for motor control and cognition, and it is one of the chemicals that drive motivation. Given all of this, my ‘New Years resolution’ may have been a little outside my realm of possibility – so I am looking for your support to be my dopamine, and motivate me to get through this. 

I’ve had great support to get me through the first week of the year, already running, riding boxing and lifting weights, at a level I haven’t for years. I know my family, my ‘Parkinson’s pals’ and the crew at ‘Brain and Body Fitness Studio’ are in my corner. A quick message or shoutout like this…

…really makes a huge difference to get me going, so thanks!

If you’d like to donate to the cause as well or instead of having a crack at some high intensity training, please do visit my fundraising page – 100% of funds go to research towards Parkinson’s treatments and ultimately a cure.

If you could please smash the like and share buttons – as usual awareness is key if we are going to make a difference!

Becoming Bionic

A magical, slightly gross process is whirring away deep within the microscopic cosmos of my brain. Over the past past twelve months, tiny strands of protein have thankfully been wrapping themselves around the alien, metallic intruders that expertly navigated their way on a mission to blast electricity into the sub thalamic nucleus just millimetres from the brain stem.

It’s a remarkable world in there. So very complex.

Sleepy neurons have been dependent on being hand fed their levodopa meals – through copious amounts of pills – to produce an unusually limited supply of dopamine that was quickly consumed transmitting messages throughout the rest of the body. These same neurons have been put on a harsh diet. A new rationing regime has been introduced – less than one quarter of what they have been accustomed to receiving. The rest of their oversized portion has been replaced with essentially two enormous cow-prods – jumpstarting them into more efficient production. 

I imagine a world of chaos on this microscopic scale. An intimidating invasion preceeded by the most cataclysmic thunderous sounds and violent earthquakes as the drill-bits gave way to blinding light streaming into the dark landscape. One that was only previously lit by the gentle and peaceful crackle of electrical current as cells and neurons communicated in this once tranquil space. In this setting it is not hard to imagine why some of these worlds might rise up and fight, rejecting this new arrival with infection, pain and discomfort.

After 12 months, graciously, my little world has now completed its choice to extend a peaceful olive branch to the invaders. They are now part of the team, completely accepted and providing a valued contribution to a truly bionic world.

We probably have a lot to learn from these tiny dynamics!

Of course, all of this sounds a touch romantic (and I’m sure nutty!) but such radical treatment – not cure – for Parkinson’s disease was only ever a glimmer of hope for the future. Never able to promise anything. It required a leap of faith from an unknown cliff and into a thick mist. It was always going to hurt. But hope is a powerful motivator, a glimmer is more than enough. It allows us to wish, to dream the impossible dream, and sometimes it even drags us over the line to achieve it.

This hope, these dreams are shared – by my family, and in my truly blessed circumstance, with friends and connections beyond anything I deserve.

In many ways my dreams are now real. Our prayers answered in the affirmative. Some ridiculously out of this world technology gives me a new body and with it a new future. It has to be a new future. My new body is a different body, my new bionic, battery powered brain is different, and they bring new quirks to learn, new behaviours to become accustomed to. 

For me this means the closure of the longest chapter of my life, Principalship. A chapter that has been so life-giving and life changing, so insightful and so very memorable.

My core values won’t change, although they have been refined and put to the test, strengthened in the furnace. I have been privileged to dedicate my working life to service of others. A life that gives back more than it can take – and it can take a helluva lot! This sense of service may shift focus, and I await anxiously but positively for the grace that will direct this shift. It is a proactive wait and I am so very looking forward to strengthening connections with so many of you, re-connecting with others and of course starting new ones. Again, I am so blessed to begin this new chapter close to home. How incredibly valuable is time? and time I have – to spend with my beautiful girls, and my family.