Tag Archives: Young Onset

Luck or Grace? Act 1

Bradykinesia is a common symptom of Parkinson’s Disease. It translates literally from the Greek – Bradys: delayed, slow or tardy; and Kinesis: movement or motion.

Not quite the stereotypical shaking…it feels like moving through a viscous liquid.

As if by magical incantation, those words of pre-emptive diagnosis, (“I think you have Parkinson’s Disease”) lingering like the smell of dog excrement on a shoe; conjured Parkinsonism symptoms instantaneously. 

The following moments could have easily taken place in the deepest depths of the ocean, where the increased pressure and aqueous solution slow our human movements down to an embarrassing, amateur-like attempt, to proceed through the foreign underwater landscape. All the while fish dart, dancing through the coral and weed, perfectly designed to be unencumbered with grace and speed in this terrain.

The invisible fluid wrapped around my legs trying desperately to hold me back, whilst it seeped into my skull and violated my thoughts, as I struggled onward to the reception desk. My left paw clung to the desk as though I could easily be swept away; whilst my right littered papers of instructions and procedures, that were well beyond my clouded mind’s capacity for cognition.

Thankfully the attending receptionist recognised what was, for me – a new and disturbing state of mind. A head full of information and questions fighting for attention, with all the manners of a parliamentary session; constructing around my common sense, an impenetrable barrier of befuddlement –  and yet for her, what must likely be, an everyday opportunity for kindness. As though gifted with pentecostal abilities, she effortlessly translated my garbled, nonsensical response to “How can I help you?”

Gently Reshuffling my paperwork along the desk with meticulous precision; her calm demeanour acted to melt away my surrounding and intruding fog, bringing me back to the world that more closely resembled the one I understood. 

‘I’ll look after these, Todd. But you best take this one straight to Medical Imaging. They are already booking for 6 months time so do that straight away…Todd, there’s a water dispenser at the end of the corridor. Have some water and follow the signage.”

I took the referral back from the receptionist, headed down the corridor and filled her wise prescription into a small, delicate and scrunchy white plastic cup. Not quite a full mouthful, I re-filled, took a breath, poured the second cup of cooled water down my throat and allowed my vision to sharpen on the sign that would direct me to Medical Imaging.

“We’re currently booking for August.” The new receptionist greeted me and collected the referral simultaneously. The gentle lift of her brow indicated that her attention had shifted to Professor Wilcox’s scrawled note at the top of the page. 

Please book this in as soon as possible.

Her kind eyes looked back to what I can imagine to have been a pasty ghostlike shell of a man, stooped with a burden of fear and confusion. Time would certainly have appeared critically important, and the receptionist swooped into action. ‘Well look at that, your lucky day…’ – her eyes fluttered back down as the squeak of an awkward chuckle prematurely escaped from the back of her mouth; betraying her silent wish to retract those ironic words – ‘…we’ve had a cancellation at 5pm, do you think you could come back today?’

Whatever action my shell indicated as a response, must have been understood as affirmative. The appointment was made and I absentmindedly navigated my way back to the symbolically safe and familiar bubble of my car. My initial and full of bravado self-talk piped up, directing me back to work; before being muffled into submission, by the single, involuntary, cool drop of salted water, sliding through eyelashes; creating a glistening trail across the open plains of my cheek before disappearing into the ginger jungle of my beard.

The car obediently switched on and took me home.

A tip of the hat – to women

International women’s day 8th March 2019

A fitting coincidence for this week’s post – as I recall the hard to comprehend but insightful and wise referral from my GP – whom I was meeting for the first time. My featured painting above is not of Dr Wong – who proved an excellent physician in my time with her. If I were to paint or even list the women I have met, whom I admire for qualities that I aspire to myself; I’d lose any time to dedicate to this post! I decided instead given the timing of this post to paint the three most important, loving, inspiring young women in my life.

“…Neurologist…” The word reverberated, bouncing off the inside of my skull, compressing its ‘alphabetti spagetti’ letters against the bone, reorientating, and launching back through my muddied mind, slowly losing momentum, until eventually settling into focus. 

Sadly, by now I was sitting back in my car having not allowed any further advice or information from Dr Wong to penetrate into my short term memory. Most of the fundamental cores of my identity, sprout from or entangle with my mind: my intelligence (not MENSA, but no dummy!), my lateral thinking, my problem solving, my wit, my leadership. To refer me to a brain specialist was about the most disparaging insult that I had been belted with in my life – and let’s not forget that the handsome man you see now 😜, grew up in a country town, with three brothers, a mop of red hair and a tan that preferred to emerge as many individual, teeny tiny tans, rather than an even coating regular one. You have to get up very early to penetrate my alligator tough skin with an insult!

Yet, there it was, my brand new GP (having not been to the doctor since moving to town more than a year previous) who I had misjudged immediately, to be too soon out of Medical school, too timid, too gentle. This ‘caveman’ needs a doctor capable of communicating in guttural groans, interspersed with a vigorous yet simple, European sign language styled vocabulary. A doctor who is able to lather their patient chair with concentrated sulphuric acid – because they have no intention of letting me sit down long enough to start the corrosion of my derrière. A brief, deeply vibrating shudder coursed from my heels through the tip of my spine, catalysing a slow shake of my head, whilst persuading me to gently massage the back of my neck with my clammy palm. I don’t like being wrong, and my inability to cope magnanimously with my wrong presumption; escalated my current physical symptoms. Dr Wong – although packaged as delicate and dainty as a butterfly; was sharper than a hyperdermic needle and as hard hitting as Sonny Liston. 

Still, I refused to believe that my casual mention of a caffeine fuelled hand tremoring on the keyboard, could possibly indicate a problem with my brain. Perhaps arrogantly, more likely fearfully and with the safety of being alone in my car, I thought to myself as I took a final lingering glance at the referral form, “Not this brain, no way.” 

As the date of my referral loomed closer I clung to one final act of defiance against Dr Wong’s wisdom. In hindsight, so very predictably I made the last minute decision to prioritise my work over my health; and in the blink of an eye I had postponed my neurology appointment for another 3 months – allowing me to snuggle comfortably with my denial through the Christmas break – right up until the beginning of February in 2017. 

 

 

Was that a Mack truck?

Dragging myself out of bed, took the effort of someone trapped in an upturned car with petrol dripping slowly toward sparking electrical cables. The doona as resistant as a buckled seatbelt and the carpet under my feet seemed littered with shattered pieces of windscreen. I shuffled to the bathroom and prepared for the stinging pellets of cold water that would jolt my system awake. My morning routine was familiar enough that there was no need to open my eyes, and so my eyelids remained snugly together, pretending to steal a final moment of sleep, until the cold water, like the tin-man’s oil can, released their bond and allowed the light to bounce into my eyes. Conveniently, the cold water easily explained away the shivering that permeated my body.

The image of a car accident seems apt, as this morning – like most lately- I felt hit by a truck. Even so, it is easier to justify this to myself rather than risk thinking anything might be wrong or that I might be in any way abnormal: I have a demanding job; I don’t exercise like I used to; my sleep is interrupted by poking thoughts of responsibility… with enough determination to avoid looking more deeply at this problem, the list of acceptable alternate conclusions is without end.

My wife finally loses her vice like grip of her tongue: ‘I don’t think it’s ok for you to feel like this Todd.’

My stereotypical, caveman bravado whirred to life; unlocking an endless list of standard phrases, that our childhoods were subjected to – in a loving attempt to build resilience from our parents and teachers. Without thought or control, they spew forth to make a jumbled argument of;

  • Life isn’t meant to be easy.
  • They call it work, because every other four letter word was taken.
  • Short term pain – long term gain.
  • I’m big enough and ugly enough to take care of myself.
  • Money doesn’t grow on trees.
  • Work hard now, reap the benefit later.
  • Success takes hard work and sacrifice.
  • Nothing comes from nothing.

In hindsight, I know that I recognised immediately that my wife was right on the money – as she usually is – but as I rarely admit. 

As the more gracious and emotionally intelligent half of this relationship, she allowed my crazy rhetoric to end this conversation. Yet, as the realisation of my overreaction settled, my niggling cough broke the silence and provided me with an alternate path to my wife’s obvious intent, whilst manipulating my ego into thinking it was my idea. 

‘I can’t seem to shake this cough – I think I’ll go to the doctor.’

 

 

Too much coffee?

It began with a tremor that visited so briefly and has not yet returned. The taste of my third cup of coffee was beginning to go stale at the back of my throat, reminding me both that my children were waiting and, of course, to fetch a mint on my way out. 

Before the keyboard smoke could form an ember, I polished off the final paragraph of the newsletter. As my right hand began autopiloting the save process; my left hand entered it’s own private disco. It rocked rapidly back and forth of its own accord. I thrashed my arm up and down as though I may have had a deadly spider poised to inject it’s toxins into the back of my hand. As I relaxed my arm my hand came to rest on its familiar place on the keyboard. The bizarre moment had passed. ‘Time for a caffeine detox!’ I thought as  I noticed the ever growing pile of mugs on my desk.

I scooped them up and moved them to the sink in the staff room (A terrible habit that I am forever in trouble for, as the dishwasher is only inches further. There are some challenges I seem unable to fix!) I grabbed my bag and rushed out of the office. A niggling cough, interrupting my general call of ‘Goodbye’ to anyone who was within range.